The Stigma of Mental Illness - End of the Story?

648 Pages·2017·10.49 MB·English

by  Wolfgang Gaebel

The Stigma of
Mental Illness –
End of the Story?
Wolfgang Gaebel
Wulf Rössler
Norman Sartorius
Editors
123
The Stigma of Mental
Illness - End of the Story?

Wolfgang Gaebel (cid:129) Wulf Rössler
Norman Sartorius
Editors
The Stigma of Mental
Illness - End of the Story?
Editors
Wolfgang Gaebel Norman Sartorius
Department of Psychiatry and Psychotherapy Association for the Improvement of Mental
Heinrich-Heine-University Health Programmes
LVR-Klinikum Düsseldorf Geneva
Düsseldorf Switzerland
Germany
Wulf Rössler
Psychiatric University Hospital
University of Zurich
Zurich
Switzerland
ISBN 978-3-319-27837-7 ISBN 978-3-319-27839-1 (eBook)
DOI 10.1007/978-3-319-27839-1
Library of Congress Control Number: 2016938229
Springer Cham Heidelberg New York Dordrecht London
© Springer International Publishing Switzerland 2017
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Contents
Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . xv
Wolfgang Gaebel , Wulf Rössler , and Norman Sartorius
Part I Stigma and Discrimination: Different Perspectives
1 On Revisiting Some Origins of the Stigma Concept as It Applies
to Mental Illnesses . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 3
Bruce G. L ink and Heather Stuart
2 Stigma and Stigmatization Within and Beyond Psychiatry . . . . . . . . 29
Asmus Finzen
3 Structures and Types of Stigma . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 43
Lindsay Sheehan , Katherine Nieweglowski , and Patrick W. Corrigan
4 Stigma in Different Cultures . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 67
Mirja Koschorke , Sara Evans-Lacko , Norman Sartorius ,
and Graham Thornicroft
5 Disorder-specific Differences . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 83
Claire Henderson
6 Who Is Contributing? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 111
Alexandre Andrade Loch and Wulf Rössler
7 Discrimination and Stigma. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 123
Dzmitry Krupchanka and Graham Thornicroft
8 The Influence of Stigma on the Course of Illness . . . . . . . . . . . . . . . . . 141
Harald Zäske
9 Changes of Stigma over Time . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 157
Georg Schomerus and Matthias C. Angermeyer
10 The Viewpoint of GAMIAN-Europe . . . . . . . . . . . . . . . . . . . . . . . . . . . 173
Pedro Manuel Ortiz de Montellano
11 The Role of Family Caregivers: A EUFAMI Viewpoint . . . . . . . . . . . 191
Bert Johnson
v
vi Contents
12 Stigma, Human Rights and the UN Convention
on the Rights of Persons with Disabilities . . . . . . . . . . . . . . . . . . . . . . . 209
Peter Bartlett
Part II “Fighting” Stigma and Discrimination: Programs in Different
Parts of the World
13 Opening Doors: The Global Programme to Fight Stigma
and Discrimination Because of Schizophrenia . . . . . . . . . . . . . . . . . . . 227
Heather Stuart and Norman Sartorius
14 Fighting Stigma in Canada: Opening Minds Anti-Stigma
Initiative . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 237
Shu-Ping Chen , Keith Dobson , Bonnie Kirsh , Stephanie Knaak ,
Michelle K oller , Terry Krupa , Bianca Lauria-Horner , Dorothy Luong ,
Geeta Modgill , Scott Patten , Michael Pietrus , Heather Stuart ,
Rob Whitley , and Andrew Szeto
15 Like Minds, Like Mine: Seventeen Years of Countering
Stigma and Discrimination Against People with Experience
of Mental Distress in New Zealand . . . . . . . . . . . . . . . . . . . . . . . . . . . . 263
Ruth Cunningham , Debbie Peterson , and Sunny Collings
16 Australian Country Perspective: The Work of beyondblue
and SANE Australia . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 289
Georgie Harman and Jack Heath
17 ONE OF US: The National Campaign for Anti-Stigma
in Denmark . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 317
Johanne Bratbo and Anja Kare Vedelsby
18 The Time to Change Programme to Reduce Stigma
and Discrimination in England and Its Wider Context . . . . . . . . . . . 339
Claire Henderson , Sara Evans Lacko , and Graham Thornicroft
19 See Change: The National Mental Health Stigma
Reduction Partnership in Ireland . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 357
Kahlil Coyle , Sorcha Lowry , and John Saunders
20 See Me: Scotland Case Study . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 379
Judith Robertson
21 The German Mental Health Alliance . . . . . . . . . . . . . . . . . . . . . . . . . . 405
Astrid Ramge and Heike Becker
22 Stigma in Midsize European Countries . . . . . . . . . . . . . . . . . . . . . . . . 417
Alina Beldie , Cecilia Brain , Maria Luisa Figueira , Igor Filipcic ,
Miro Jakovljevic , Marek Jarema , Oguz Karamustafalioglu ,
Daniel König , Blanka Kores Plesničar , Josef Marksteiner ,
Filipa Palha , Jan Pecenák , Dan Prelipceanu , Petter Andreas Ringen ,
Magdalena Tyszkowska , and Johannes Wancata
Contents vii
Part III “Fighting” Stigma and Discrimination:
Strategic Considerations
23 Fields of Intervention . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 435
Richard Warner
24 Strategies to Reduce Mental Illness Stigma . . . . . . . . . . . . . . . . . . . . . 451
Nicolas Rüsch and Ziyan Xu
25 “Irre menschlich Hamburg” – An Example of
a Bottom-Up Project . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 469
Thomas Bock, Angela Urban, Gwen Schulz, Gyöngyver Sielaff,
Amina Kuby, and Candelaria Mahlke
26 Illness Models and Stigma . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 485
Andreas Heinz
Part IV “Fighting” Stigma and Discrimination: Commentaries
27 What Has Proven Effective in Anti- Stigma Programming . . . . . . . . . 497
Heather Stuart
28 What Has Not Been Effective in Reducing Stigma . . . . . . . . . . . . . . . 515
Julio Arboleda-Flórez
29 Closing Mental Health Gaps Through Tackling Stigma
and Discrimination . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 531
Sue Bailey
Part V Overcoming Stigma and Discrimination: Recent
Programmatic and Contextual Approaches
30 Improving Treatment, Prevention, and Rehabilitation . . . . . . . . . . . . 537
Wolfgang Gaebel , Mathias Riesbeck , Andrea Siegert , Harald Zäske ,
and Jürgen Zielasek
31 Stigma and Recovery . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 551
Elizabeth Flanagan , Anthony Pavlo , and Larry Davidson
32 Stigma and the Renaming of Schizophrenia . . . . . . . . . . . . . . . . . . . . 571
Toshimasa Maruta and Chihiro Matsumoto
33 Trialogue: An Exercise in Communication Between Users,
Carers, and Professional Mental Health Workers Beyond Role
Stereotypes . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 581
M. Amering
34 Empowerment and Inclusion: The Introduction of Peer
Workers into the Workforce . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 591
Geoff Shepherd and Julie Repper
viii Contents
35 Targeting the Stigma of Psychiatry and Psychiatrists . . . . . . . . . . . . . 613
Ahmed Hankir , Antonio Ventriglio , and Dinesh Bhugra
36 Exemplary Contribution of Professional Scientific Organizations:
The European Psychiatric Association . . . . . . . . . . . . . . . . . . . . . . . . . 627
Marianne Kastrup , Andreas Heinz , and Danuta Wasserman
37 Addressing Stigma: The WHO Comprehensive Mental
Health Action Plan 2013–2020 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 635
Shekhar Saxena
Conclusion and Recommendations for Future Action . . . . . . . . . . . . . . . . 641
Wolfgang Gaebel , Wulf Rössler , and Norman Sartorius
Index . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 651
Contributors
Michaela Amering Department of Psychiatry and Psychotherapy ,
Medical University of Vienna , Vienna , Austria
Matthias C. Angermeyer Department of Public Health , University of Cagliari ,
Cagliari , Italy
Julio Arboleda-Flórez Department of Psychiatry , Queen’s University ,
Kingston , ON , Canada
Sue Bailey Academy of Medical Royal Colleges , London , UK
Peter Bartlett Department of Law and Social Sciences, Faculty of Social
Sciences , University of Nottingham , Nottingham , UK
Heike Becker Department of Psychiatry and Psychotherapy, Medical Faculty ,
Heinrich-Heine-University, LVR-Klinikum Düsseldorf , Düsseldorf , Germany
Alina Beldie Department of Psychiatry Middelfart , Region of Southern Denmark ,
Middelfart , Denmark
Dinesh Bhugra Institute of Psychiatry, King’s College London , London , UK
Thomas Bock Center for Psychosocial Medicine, University Medical Center
Hamburg Eppendorf , Hamburg , Germany
Irre menschlich Hamburg e.V., Center for Psychosocial Medicine, University
Medical Center Hamburg Eppendorf , Hamburg , Germany
Cecilia Brain Institute of Neuroscience and Physiology, Department of
Psychiatry and Neurochemistry, Sahlgrenska Academy , University of Gothenburg ,
Gothenburg , Sweden
Johanne Bratbo The National Campaign for Anti-stigma in Denmark,
Danish Committee for Health Education , Copenhagen , Denmark
Shu-Ping Chen Centre of Health Services and Policy Research, Mental Health
Commission of Canada , Ottawa , ON , Canada
Sunny Collings Dean’s Department , University of Otago , Wellington , New Zealand
ix