Pediatric Psycho-Oncology: A Quick Reference on the Psychosocial Dimensions of Cancer Symptom Management

433 Pages·2015·11.97 MB·English

by  Lori S. Wiener, Maryland Pao, Anne E. Kazak , Mary Jo Kupst, Andrea Farkas Patenaude, Robert J. Arceci

Pediatric
Psycho-Oncology
APOS CLINICAL REFERENCE HANDBOOKS
Psycho-Oncology: A Quick Reference on the Psychosocial Dimensions of Cancer
Symptom Management, 2nd edition, Jimmie C. Holland, Mitch Golant,
Donna B. Greenberg, Mary K. Hughes, Jon A. Levenson, Matthew
J. Loscalzo, William F. Pirl
Pediatric Psycho-Oncology: A Quick Reference on the Psychosocial Dimensions
of Cancer Symptom Management, 2nd edition, Lori Wiener, Maryland Pao,
Anne E. Kazak, Mary Jo Kupst, Andrea Farkas Patenaude
Geriatric Psycho-Oncology: A Quick Reference on the Psychosocial Dimensions
of Cancer Symptom Management, Jimmie C. Holland, Talia Weiss Wiesel,
Christian J. Nelson, Andrew J. Roth, Yesne Alici
Pediatric
Psycho-Oncology
A Quick Reference on the Psychosocial
Dimensions of Cancer Symptom
Management

second edition
Edited by
Lori Wiener, PhD, DCSW
Maryland Pao, MD

Anne E. Kazak, PhD, ABPP

Mary Jo Kupst, PhD

Andrea Farkas Patenaude, PhD
Robert J. Arceci, MD, PhD
1
1
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Library of Congress Cataloging-in-Publication Data
Quick reference for pediatric oncology clinicians
Pediatric psycho-oncology : a quick reference on the psychosocial dimensions of
cancer symptom management/edited by Lori Wiener, Maryland Pao, Anne E. Kazak,
Mary Jo Kupst, Andrea Farkas Patenaude; with the American Psycho-Social Oncology
Society.—2nd edition.
p. ; cm.
Preceded by: Quick reference for pediatric oncology clinicians/senior editors, Lori
Wiener, Maryland Pao. c2009. Includes bibliographical references and index.
ISBN 978–0–9–9335–4 (alk. paper)
I. Wiener, Lori, editor. II. Pao, Maryland, editor. III. Kazak, Anne E., editor.
IV. Kupst, Mary Jo, editor. V. Patenaude, Andrea Farkas, editor. VI. American
Psychosocial Oncology Society. VII. Title.
[DNLM: . Child. 2. Neoplasms—psychology. 3. Age Factors. 4. Family
Relations. 5. Neoplasms—therapy. 6. Social Support. QZ 275]
RC28.C4
68.92′994—dc23
204022636
This material is not intended to be, and should not be considered, a substitute for medical
or other professional advice. Treatment for the conditions described in this material is
highly dependent on the individual circumstances. And, while this material is designed to
offer accurate information with respect to the subject matter covered and to be current
as of the time it was written, research and knowledge about medical and health issues
is constantly evolving and dose schedules for medications are being revised continually,
with new side effects recognized and accounted for regularly. Readers must therefore
always check the product information and clinical procedures with the most up-to-date
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consequence of the use and/or application of any of the contents of this material.
9 8 7 6 5 4 3 2 
Printed in the United States of America
on acid-free paper
This book is dedicated to all children and families affected by pediatric can-
cer. Those we have worked with have taught us what we are now sharing
with others in this volume.
LW
MP
AEK
MJK
AFP
RJA

Contents
Foreword xi
Preface xiii
Acknowledgments xv
Contributors xvii
Introduction xxiii
Jimmie C. Holland
I. Cancers of Childhood 
. Leukemias and Lymphomas 3
Nirali N. Shah and Alan S. Wayne
2. Neuroblastoma 11
Giselle Saulnier Sholler
3. Wilms Tumor 19 vii
Jeffrey S. Dome
4. Retinoblastoma 27
Debra L. Friedman and Anna T. Meadows
5. Sarcomas and Other Solid Tumors 31
Melinda Merchant and Matthew Wright
6. Tumors of the Central Nervous System 39
Katherine E. Warren
II. Hereditary Cancers 47
7. Hereditary Cancer Syndromes 49
David Malkin
8. Genetic Counseling for Hereditary Cancer in
Childhood 59
Anu Chittenden and Jaclyn Schienda
9. Psychosocial Aspects of Pediatric Hereditary Cancer
Syndromes 65
Andrea Farkas Patenaude
S III. Specific Symptom Management 77
T
N
TE 0. Nausea, Vomiting, Anorexia, and Fatigue 79
N
O Marilyn J. Hockenberry and Cheryl C. Rodgers
C
. Pain 91
Lonnie Zeltzer and Elliot J. Krane
2. Anxiety and Depression 105
Maryland Pao and Anne E. Kazak
3. Fertility and Sexuality 119
Jennifer M. Levine, Kevin C. Oeffinger, Jennifer S. Ford, and
Charles A. Sklar
4. Psychiatric Emergencies 127
Travis Mickelson, D. Richard Martini, and Maryland Pao
IV. Treatment Issues and Interventions 39
5. Medical Aspects of Transplantation 141
Allistair Abraham and Terry J. Fry
6. Psychosocial Issues for Transplant Patients and
viii Donors 149
Sean Phipps
7. Medication Adherence 157
Ahna L. H. Pai and Dennis Drotar
8. Cognitive Sequelae of Cancer Treatment 165
Brian P. Daly and Ronald T. Brown
9. Psychotherapeutic Interventions 177
Barbara Sourkes, Anne E. Kazak, and Lori Wiener
20. Electronic Interventions 187
Kristina K. Hardy and Martha A. Grootenhuis
2. Integrative Oncology 199
Olle Jane Z. Sahler, Hilary McClafferty, and Marilyn A. Rosen
V. Communication and Supportive Care Considerations 219
22. Talking to Children and Adolescents about Cancer 221
Joanna Breyer
23. Coping with Pediatric Cancer 241
Mary Jo Kupst and Andrea Farkas Patenaude
24. Impact of Cancer on Family and Siblings 253
Avi Madan-Swain and Pamela S. Hinds
25. Special Considerations in Working with Families 271 S
T
N
Lori Wiener, Steven K. Reader, and Anne E. Kazak E
T
N
26. Spiritual and Religious Considerations 281 CO
Mary Lynn Dell and Daniel H. Grossoehme
27. School and Peer Relationships 291
Robert B. Noll and William M. Bukowski
28. School and Academic Planning 297
Ernest R. Katz
VI. Special Issues in Pediatric Oncology 31
29. Ethical Issues in Pediatric Oncology 313
Julia A. Kearney and Marguerite S. Lederberg
30. Integrating Palliative Care 325
Sarah Friebert, Todd Dalberg, and Lori Wiener
3. Caring for International Patients 335
Maria E. Radulovic
32. Social Media and Health Care 345 x
i
Rachel A. Tunick and Sarah R. Brand
33. Pediatric Cancer Survivors: Moving Beyond Cure 357
Lisa A. Schwartz, Julia H. Rowland, and Aziza Shad
Appendix: Health-related Quality of Life in
Pediatric Oncology 383
Diana Nora, Rebecca A. Prengler, and Lisa M. Horowitz
Index 391