Multicoloured Mayhem: Parenting the Many Shades of Adolescents and Children With Autism, Asperger Syndrome and Ad/Hd

257 Pages·2003·2.36 MB·English

by  Jacqui Jackson

M U LT I C O L O U R E D M A Y H E M
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M U L T I C O L O U R E D
M A Y H E M
Parenting the many shades of adolescents
and children with autism,
Asperger Syndrome and AD/HD
Jacqui Jackson
Jessica Kingsley Publishers
London and New York
ExtractsreprintedwithpermissionfromtheDiagnosticandStatisticalManualofMentalDisorders,Text
Revision,Copyright©2000AmericanPsychiatricAssociation.
ExtractreproducedwithpermissionfromAGuidetoAspergerSyndromebyChristopherGillberg,
Copyright©2002CambridgeUniversityPress.
Allrightsreserved.Nopartofthispublicationmaybereproducedinanymaterialform(including
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incidentallytosomeotheruseofthispublication)withoutthewrittenpermissionofthecopyright
ownerexceptinaccordancewiththeprovisionsoftheCopyright,DesignsandPatentsAct1988or
underthetermsofalicenceissuedbytheCopyrightLicensingAgencyLtd,90TottenhamCourt
Road,London,EnglandW1P9HE.Applicationsforthecopyrightowner’swrittenpermissionto
reproduceanypartofthispublicationshould
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Warning:Thedoingofanunauthorisedactinrelationtoacopyrightworkmayresultinbothacivil
claimfordamagesandcriminalprosecution.
TherightofJacquiJacksontobeidentifiedasauthorofthisworkhasbeenassertedbyherin
accordancewiththeCopyright,DesignsandPatentsAct1988.
FirstpublishedintheUnitedKingdomin2004
byJessicaKingsleyPublishersLtd
116PentonvilleRoad
LondonN19JB,England
and
29West35thStreet,10thfl.
NewYork,NY10001-2299,USA
www.jkp.com
Copyright©JacquiJackson2004
Secondimpression2004
LibraryofCongressCataloginginPublicationData
Jackson,Jacqui.
Multicolouredmayhem:parentingthemanyshadesofadolescentsandchildrenwithautism,Asperger
syndrome,andAD/HD/JacquiJackson.--1stAmericanpbk.ed.
p.cm.
Includesbibliographicalreferences.
ISBN1-84310-171-8(pbk.)
1. Autistic children--Care. 2. Autistic children--Family relationships. 3. Asperger's
syndrome--Patients--Family relationships. 4. Attention-deficit hyperactivity disorder--Patients--Care. 5.
Developmentallydisabledchildren--Care.6. Parentsofautisticchildren.7. Parenting. I.Title.
RJ506.A9J3252004
649'.154--dc22
2004001110
BritishLibraryCataloguinginPublicationData
ACIPcataloguerecordforthisbookisavailablefromtheBritishLibrary
ISBN1843101718
PrintedandBoundinGreatBritainby
AthenaeumPress,Gateshead,TyneandWear
C O N T E N T S
ACKNOWLEDGEMENTS
1. Introduction 13
2. Meet the Jacksons 18
3. An Autism Cocktail 24
Anextrasplashof colour 25
Causesof autism 38
Theautismdetective 40
TheoverlapbetweenAD/HDandautism 41
Acolourfultapestry 42
4. Autism 49
AbitmoreaboutBen 49
Adiagnosisof autism 52
School 62
Routineandchange 64
Therapiesandinterventions 66
5. Attention Deficit, Hyperactivity Disorder (AD/HD) 74
...andnowabitmoreaboutJoe!74
DoesmychildhaveAD/HD? 75
ParentinganAD/HDchild 84
SchoolandAD/HD 89
Interventions 93
6. Asperger Syndrome 103
AspergerSyndrome–a‘mild’formof autism 104
Awaitingadiagnosis 105
AspergerSyndromeinthefamily 106
Runningan‘emulator’ 115
AspergerSyndromeinadolescence 120
Differentiscool 123
7. Family Fun 126
Anunseenguest 127
…andafewmorevisitors! 129
Treasuredmemories 133
Largefamilies 138
Foodforthought 139
8. Sibling Situations 147
Siblingrivalry 148
Siblingsof childrenwithautismandAS 152
Siblingsof childrenof AD/HD 155
Languagedifficultiesandsiblings 158
Onthepositiveside 161
9. Adolescence 163
Teenagetransformations 165
Avoidingconflict 175
Settingboundaries 177
Sex,drugsandrockandroll 179
10. Holidays: Coping with Change 183
DisneyWorlddiaries 185
Achangeisasgoodasarest! 200
Traveltips 201
Disneyadvice 203
11. Put Safety First 205
Autismnightmares 205
AtributetoEmma-Jane 207
AD/HDhazards 211
Anxietiesof AspergerSyndrome 213
Dangersof dyspraxia 217
Safetysuggestions 220
12. The Parents’ Survival Guide 223
Atimeforeverything 225
Countyourblessings 226
Maintainingyourownidentity 227
Sleepingsickness 228
Survivalskills 232
13. A Conclusion to the Chaos 237
Appendix: Diagnostic Criteria
(With apologies to those
of you like Luke who feel that either you
or your children are actually not ‘disordered’ at all!) 239
DSM-IV315.4–Diagnosticcriteriafor
DevelopmentalCoordinationDisorder(Dyspraxia) 239
DSM-IV299.00–DiagnosticcriteriaforAutisticDisorder 239
DSM-IVandDSM-IV315.00–Diagnosticcriteriafor
ReadingDisorder(Dyslexia) 241
DSM-IV299.80–DiagnosticcriteriaforAsperger’sDisorder 241
Gillberg’scriteriaforAsperger’sDisorder 242
DSM-IV314.00–Diagnosticcriteriafor
Attention-Deficit/HyperactivityDisorder 243
USEFULWEBSITES 246
RECOMMENDEDREADING 249
REFERENCES 250
INDEX 251
Thank you to all my family and friends for all
your patience and support whilst I have buried
myself in work and neglected you all!
A butterfly lights besides us like a sunbeam
and for a brief moment its glory and beauty
belong to our world
but then it flies on again,
and though we wish it could have stayed,
we feel lucky to have seen it.