Table Of ContentLIVING WITH DYSPRAXIA
of related interest
Caged in Chaos
A Dyspraxic Guide to Breaking Free
Vicitoria Biggs
ISBN 1 84310 347 8
Developmental Coordination Disorder
Hints and Tips for the Activities of Daily Living
Morven F. Ball
ISBN 1 84310 090 8
The Adolescent with Developmental Co-ordination Disorder
(DCD)
Amanda Kirby
ISBN 1 84310 178 5
Helping Children with Dyspraxia
Maureen Boon
ISBN 1 85302 881 9
How to Help a Clumsy Child
Strategies for Young Children with Developmental Motor Concerns
Lisa A. Kurtz
ISBN 1 84310 754 6
Stephen Harris in Trouble
A Dyspraxic Drama in Several Clumsy Acts
Tim Nichol
ISBN 1 84310 134 3
LIVING WITH DYSPRAXIA
A Guide for Adults with
Developmental Dyspraxia
Revised Edition
Mary Colley
Foreword by Victoria Biggs
Introduction by Amanda Kirby
Jessica Kingsley Publishers
London and Philadelphia
First published in 2000 by the Dyspraxia Foundation Adult Support Group.
Revised third edition published in 2005 by DANDA: Developmental Adult Neuro-Diversity
Association.
This edition published in 2006 by
Jessica Kingsley Publishers
116 Pentonville Road
London N1 9JB, UK
and
400 Market Street, Suite 400
Philadelphia, PA 19106, USA
www.jkp.com
Copyright © DANDA 2006
Foreword copyright © Victoria Biggs 2006
Introduction copyright © Amanda Kirby 2006
All rights reserved. No part of this publication may be reproduced in any material form (including
photocopying or storing it in any medium by electronic means and whether or not transiently or
incidentally to some other use of this publication) without the written permission of the copyright
owner except in accordance with the provisions of the Copyright, Designs and Patents Act 1988 or
under the terms of a licence issued by the Copyright Licensing Agency Ltd, 90 Tottenham Court Road,
London, England W1T 4LP. Applications for the copyright owner’s written permission to reproduce any
part of this publication should be addressed to the publisher.
Warning: The doing of an unauthorised act in relation to a copyright work may result in both a civil
claim for damages and criminal prosecution.
Library of Congress Cataloging in Publication Data
Colley, Mary.
Living with dyspraxia : a guide for adults with developmental
dyspraxia / Mary Colley ; foreword by Victoria Biggs. -- Rev. ed.
p. cm.
Includes bibliographical references (p. ) and index.
ISBN-13: 978-1-84310-452-0 (pbk. : alk. paper)
ISBN-10: 1-84310-452-0 (pbk. : alk. paper)
1. Apraxia--Popular works. I. Title.
RC394.A75C65 2006
616.85'52--dc22
2006019757
British Library Cataloguing in Publication Data
A CIP catalogue record for this book is available from the British Library
ISBN-13: 978 1 84310 452 0
ISBN-10: 1 84310 452 0
ISBN eBook pdf: 1 84642 544 1
Printed and bound in Great Britain by
Athenaeum Press, Gateshead, Tyne and Wear
CONTENTS
FOREWORD BY VICTORIA BIGGS 7
ACKNOWLEDGEMENTS 9
INTRODUCTION BY DR AMANDA KIRBY 11
1. What is Developmental Dyspraxia? 15
A definition of dyspraxia 15
What causes dyspraxia? 16
Who is affected by dyspraxia? 16
What are the symptoms of dyspraxia? 16
Associated conditions 21
So…do you have dyspraxia? 21
2. Assessment, Diagnosis and Treatment 25
First steps 26
What to do when you first seek assessment 27
Who can assess for dyspraxia? 28
What happens after assessment and diagnosis? 31
Treatment and intervention 32
Other treatments and interventions 35
3. Relaxation, Sports and Exercise 38
Relax! 39
Complementary therapies 40
Sports and exercise 43
Relaxing hobbies 46
4. Communications and Relationships 48
Conversations and discussions 49
Personal and sexual relationships 55
Taking responsibility 56
Helping yourself 59
5. Organising Yourself 62
Personal care and hygiene 62
Clothes 65
Budgeting and shopping 68
Written presentation 69
Eating, drinking and parties 71
Travelling 72
6. Organising Your Home 76
Organising your time 76
Clearing the clutter 79
Washing dishes and clothes 82
Cooking 84
Sewing and craft work 88
Do-it-yourself 89
Gardening 89
7. Studying with Dyspraxia 91
Finding the right place 93
Disabled Students Allowance 95
Getting started – How your college might help 96
Organise your studies 102
8. Dyspraxia at Work 110
Jobs and careers – Getting started 111
Disability Discrimination Act 120
Trade unions 121
How to cope in the workplace 122
9. Four Adults with Dyspraxia 127
Jean 127
Martin 129
Judith 131
Janet 133
APPENDIX 1: CLAIMING BENEFITS 137
APPENDIX 2: INDEPENDENT LIVING AND COMMUNITY CARE 140
APPENDIX 3: ASSESSMENT FOR ADULTS WITH DEVELOPMENTAL
DYSPRAXIA 143
APPENDIX 4: INTERNATIONAL DYSPRAXIA CENTRES 144
APPENDIX 5: ADULT DEVELOPMENTAL DYSPRAXIA (DCD) QUESTIONNAIRE 145
APPENDIX 6: THE MAKE-UP OF NEURO-DIVERSITY 161
DANDA: DEVELOPMENTAL ADULT NEURO-DIVERSITY ASSOCIATION 162
INDEX 164
FOREWORD
Once known as ‘clumsy child syndrome’, developmental
dyspraxia used to be perceived as a disorder from Neverland – a
childhood problem that vanishes with age. Even now, the
majority of books about dyspraxia focus on primary-school-
aged children and are written specifically for parents and
teachers. Living with Dyspraxia is the first book to openly chal-
lenge the Neverland myth, a myth that has caused countless
adults to enter the world of work with their special needs unre-
cognised and unmet.
This book is a treasure trove of excellent advice. It
includes coping strategies on topics as diverse as cookery,
learning to drive, studying at university, and applying for a job.
Mary has also done her readers a great favour by acknowledg-
ing the significant overlap between dyspraxia, the autistic
spectrum and the other specific learning differences. For most
people, dyspraxia is much more than a co-ordination disorder –
a fact that sometimes goes unrecognised.
I have been greatly helped by this book. My own copy is
well thumbed and streaked with orange highlighter. Practical,
concise, and devoid of self-pity, Living with Dyspraxia fills a gap
on the bookshelves that has stood empty for much too long.
Recently I was talking to a 21-year-old woman about her
experiences in education. She has a cocktail of learning differ-
ences, including dyspraxia, dyslexia, auditory processing diffi-
culties and autism. She was unable to speak until she was nine
years old and the true nature of her difficulties was only discov-
ered when she was 19. Now she is at university, studying to
become an educational psychologist. Despite the unsympa-
thetic and often downright abusive treatment she received as a
child with hidden disabilities, she has retained a hopeful and
gentle approach to life – an approach that the people who know
her can only wonder at.
7
8 / L I V I N G W I T H D Y S P R A X I A
Sadly, there is a tendency for adults who were failed by the
educational and medical systems to become very angry when
they finally receive a diagnosis. If you are someone who is only
just coming to terms with dyspraxia, it must be realised that this
book does not set out the terms of your death sentence. It is a
fresh expression of DANDA’s philosophy on the role of
neuro-divergent people – ‘Nothing about us without us’ – and
offers its readers the support and information they need to live
with dyspraxia. Not against it, not in spite of it, but with it.
Victoria Biggs, author of Caged in Chaos
ACKNOWLEDGEMENTS
Writing this book has not been easy. However, considering
the number of people that have been involved and the fact
that most of them are dyspraxic, I don’t think we’ve done a
bad job!
My thanks are due to many people. First to Sylvia Paul and
her family, without whom the book would not have been
possible. Jenny Peterson copyedited the book and kept me in
order (not an easy task!). She made sure that I did not make
the book even longer and translated my dyspraxic English
into something much more readable.
I would also like to thank Dorothy Penso, a paediatric
occupational therapist who has a great interest in adults with
dyspraxia, and who has the condition mildly. She helped a
great deal in the writing of the communication, relaxation and
organisation chapters. I am also grateful to Colin Revell who
helped with the chapters on definitions, assessment and
independent living in particular, and to Paul Gardner who did
most of the work on the case studies. Thank you also to Dr
Amanda Kirby, who helped so much by finding time in her
phenomenally busy schedule to advise on the book and write
the introduction. I am particularly grateful to Diana Bartlett
who helped me with this edition of the book.
Thanks go also to the many other contributors to the
book; in particular, Diana Bartlett, Andrew Burniston, Judith
Campbell, Caroline Hands, Jonathan Garland, Eleanor
Howes, David Hunt, Melanie Jameson, Penny Stafford, Jo
Todd, Dianne Zaccheo and Barbara Zanditon. I am also very
grateful to my family.
Last but not least, thank you to all those individuals with
dyspraxia, from all over the world, who have shared their
experiences of having dyspraxia with me and others and
asked so many of the questions that I have tried to answer in
the book. Without them, the book would not have been
possible.
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