International Perspectives on Public Health and Palliative Care

224 Pages·2012·2.41 MB·English

by  Libby Sallnow

International Perspectives on Public
Health and Palliative Care
Public health approaches to palli at ive care have been growing in pol icy im port­
ance and practice acceptance. This innova t ive volume ex plores the major con­
cepts, practice examples, and practice guidelines for this new approach.
The goal of ‘comprehensive care’ – seamless support for patients as they
transition between home­based care and inpatient serv ices – relies on the prin­
ciples of health pro mo tion and com mun ity de velopment to ensure ser vices are
both availa ble and im port antly appropriate for patients’ needs. In de veloping
con texts, where hosp itals and hospices may be ina ccess ible, a pub lic health
approach provides not only con tinu ity of care but greater access to good end of
life care. This book provides both an hist or ical and conceptual overview whilst
offering prac tical case examples from affluent and dev eloping con texts, in a
range of clinical settings. Finally, it draws together research­ based guidelines for
future practice.
Essential reading for pub lic health researchers and practitioners with an
inter est in end of life care and global health as well as those involved in
de veloping palli at ive care pro vi sion, International Perspectives on Public Health
and Palliative Care is the first volume to present an overview of theory and prac­
tice in this emerging field.
Libby Sallnow is a palli at ive medicine registrar at St Joseph’s Hospice, London
and is the Research Associate at the WHO Collaborating Centre for Commun­
ity Participation in Palliative Care and Long Term Care, Kerala.
Suresh Kumar is currently the Director of the WHO Collaborating Centre for
Community Participation in Palliative Care and Long Term Care.
Allan Kellehear is Professor, School of Health Administration, Dalhousie
University, Halifax, Nova Scotia, Canada. He was formerly the Professor of
Palliative Care at La Trobe University and was dire ctor of Australia’s first poli cy
and practice pallia t ive care unit in a school of pub lic health.
Routledge Studies in Public Health
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International Perspectives on Public Health and Palliative Care
Edited by Libby Sallnow, Suresh Kumar and Allan Kellehear
International Perspectives on
Public Health and Palliative
Care
Edited by Libby Sallnow, Suresh Kumar
and Allan Kellehear
First published 2012
by Routledge
2 Park Square, Milton Park, Abingdon, Oxon OX14 4RN
Simultaneously published in the USA and Canada
by Routledge
711 Third Avenue, New York, NY 10017
Routledge is an imprint of the Taylor & Francis Group, an informa business
© 2012 selection and editorial matter Libby Sallnow, Suresh Kumar and
Allan Kellehear; individual chapters, the contributors
The right of the editors to be identified as the authors of the editorial
material, and of the authors for their individual chapters, has been
asserted in accordance with sections 77 and 78 of the Copyright, Designs
and Patents Act 1988.
All rights reserved. No part of this book may be reprinted or reproduced
or utilized in any form or by any electronic, mechanical, or other means,
now known or hereafter invented, including photocopying and recording,
or in any information storage or retrieval system, without permission in
writing from the publishers.
Trademark notice: Product or corporate names may be trademarks or
registered trademarks, and are used only for identification and explanation
without intent to infringe.
British Library Cataloguing in Publication Data
A catalogue record for this book is available from the British Library
Library of Congress Cataloging in Publication Data
International perspectives on public health and palliative care / edited by
Libby Sallnow, Suresh Kumar, and Allan Kellehear.
p. ; cm. – (Routledge studies in public health)
Includes bibliographical references.
1. Palliative treatment. 2. Public health–International cooperation. I.
Sallnow, Libby. II. Kumar, Suresh, 1961­ III. Kellehear, Allan, 1955­ IV.
Series: Routledge studies in public health.
[DNLM: 1. Palliative Care–methods. 2. Palliative Care–standards. 3.
International Cooperation. 4. Models, Organizational. 5. Public Health–
methods. 6. Public Health–standards. WB 310]
R726.8I573 2012
362.1–dc23
2011014007
ISBN: 978­0­415­66350­2 (hbk)
ISBN: 978­0­203­80318­9 (ebk)
Typeset in Goudy
by Wearset Ltd, Boldon, Tyne and Wear
For Michael Sallnow
(1949–1990)
Contents
List of illustrations ix
List of contributors x
Preface xii
Acknowledgements xiv
1 Public health and palliative care: an historical overview 1
ALLAN KELLEHEAR AND LIBBY SALLNOW
2 “But we’re already doing it!”: examining conceptual blurring
between health promotion and palliative care 13
JOHN ROSENBERG
3 Illness trajectories and palliative care: implications for
holistic service provision for all in the last year of life 30
SCOTT A. MURRAY AND PETER Mc LOUGHLIN
4 Public health approaches to palliative care in Australia 52
BRUCE RUMBOLD
5 Public health and palliative care: a perspective from Africa 69
JULIA DOWNING, LIz GWYTHER AND
FAITH MWANGI­ POWELL
6 Public health developments in palliative care services in the
UK 85
STEVE CONWAY
7 Public health approaches to palliative care: the
Neighbourhood Network in Kerala 98
SURESH KUMAR
viii Contents
8 A public health approach to palliative care in East London:
early developments, challenges and plans for the future 110
HEATHER RICHARDSON
9 The campaign to build a dementia-f riendly community 123
THE 100­MEMBER COMMITTEE, JAPAN
10 Discovering options: an Australian initiative in the care of
the dying 139
HELEN­ ANNE MANION, GERARD MANION AND
KATHLEEN DANSIE
11 ‘Let’s talk about dying’: changing attitudes towards hospices
and the end of life 156
NIGEL HARTLEY
12 Public health approaches to end of life in Ecuador: avoiding
suffering at the end of life – a health service issue? 172
PATRICIA GRANJA H.
Appendix 1: Palliative care policy for Kerala 182
THE GOVERNMENT OF KERALA
Appendix 2: Charter for the normalisation of death, dying
and loss 192
INTERNATIONAL WORK GROUP ON DEATH, DYING AND
BEREAVEMENT
Appendix 3: Practice guidelines for palliative care 197
ALLAN KELLEHEAR, GAIL BATEMAN AND BRUCE RUMBOLD
Appendix 4: An action plan for the initiation of a palliative
care in the service in the community 201
THE NEIGHBOURHOOD NETWORK IN PALLIATIVE CARE,
KERALA
Appendix 5: Model of Palliative Care, Lothian, Scotland 202
NHS LOTHIAN
Appendix 6: Survey questionnaire for HOME Hospice for
Chapter 10 203
HOME HOSPICE
Index 205
Illustrations
Figures
2.1 Integration of health prom o tion com pon ents 22
3.1 The three main trajectories of decline at the end of life 31
3.2 When is the palli at ive care approach indicated? 37
3.3 Lung cancer: phys ical, social, psychological and spiritual
trajectories 39
3.4 Heart failure: phys ical, social, psychological and spiritual
trajectories 41
3.5 Trajectories of phys ical, social, and psychological and
spiritual wellbeing in family carers of patients with lung
cancer, from diag nosis to death 46
3.6 Four cate gor ies of end of life dev elopments 48
4.1 Conceptual model of level of need within the popul a tion of
patients with a life limiting illn ess 57
7.1 Palliative care in Kerala – the emerging model 106
10.1 HOME Hospice relationship model 140
10.2 Relationship of carers to patients 148
10.3 Age of carers 149
12.1 Health cover age in Ecuador 174
Tables
2.1 Translating the Ottawa Charter to pallia t ive care 24
4.1 Community de velopment models used in health care 60
5.1 Cause of death, percentage of total deaths, 2002 70
5.2 Typology of hospice pallia t ive care ser vice de velopment in
Africa 72
6.1 Frequency and percentage of deaths by place of occurrence in
England and Wales, 1999–2003 89
12.1 Estimate of people requiring pallia t ive care in Ecuador, 2008 177
Contributors
100 Member Committee is a committee of approximately 100 organ iza tions
and indi viduals, with Tsutomu Hotta, CEO of Sawayaka Welfare Founda­
tion, serving as its chairman, Japan.
Dr Steve Conway is Senior Lecturer – Research Methods, School of Health
and Social Care, Teesside University, Middlesbrough, UK.
Kathleen Dansie is Project Manager for South African HOME Hospice Project;
Teacher Librarian, Australia.
Dr Julia Downing is Honorary Professor of Palliative Medicine at Makerere
University, Uganda, and an International Palliative Care Consultant.
Dr Patricia Granja H. is Medical doctor and lecturer/researcher at the Institute
of Public Health, Pontifical University of Ecuador.
Dr Liz Gwyther is Executive Director, Hospice and Palliative Care Association
of South Africa.
Nigel Hartley is Director of Supportive Care, St Christopher’s Hospice
London.
Professor Allan Kellehear is Professor, School of Health Administration,
Dalhousie University, Halifax, Nova Scotia, Canada.
Dr Suresh Kumar is Director of the Institute of Palliative Medicine, Kerala,
India, WHO Collaborating Centre for Community Participation in Pallia­
tive Care and Long Term Care.
Gerard Manion, Medal of the Order of Australia (OAM), is Director Cancer
Care Program and Co­ founder HOME Hospice, Australia.
Dr Helen- Anne Manion, OAM, is Palliative Care Physician and Co­f ounder
HOME Hospice, Australia.
Peter McLoughlin is Strategic Programme Manager, Lothian NHS Board, Edin­
burgh, Scotland.