Table Of ContentHealth Humanities Reader
Health Humanities Reader
Edited by
Therese Jones, Delese Wear, and Lester D. Friedman
Assistant Editor
Kathleen Pachucki
R U P
UTGERS NIVERSITY RESS
N B , N J , L
EW RUNSWICK EW ERSEY AND ONDON
Library of Congress Cataloging-in-Publication Data
Health humanities reader / edited [by] Therese Jones, Delese Wear, and Lester D. Friedman;
assistant editor Kathleen Pachucki.
p.; cm.
Includes bibliographical references and index.
ISBN 978-0-8135-6247-6 (hardcover: alk. paper)
ISBN 978-0-8135-6246-9 (pbk.: alk. paper)
ISBN 978-0-8135-6248-3 (e-book)
I. Jones, Therese, editor of compilation. II. Wear, Delese, editor of compilation. III. Friedman,
Lester D., editor of compilation.
IV. Pachucki, Kathleen, editor of compilation.
[DNLM: 1. Philosophy, Medical. 2. Education, Medical. 3. Health Personnel—education. 4.
Humanities.
W 61]
RA418
362.101—dc23
2013021942
A British Cataloging-in-Publication record for this book is available from the British Library.
This collection copyright © 2014 by Rutgers, The State University
Individual chapters copyright © 2014 in the names of their authors
All rights reserved
No part of this book may be reproduced or utilized in any form or by any means, electronic or
mechanical, or by any information storage and retrieval system, without written permission from the
publisher. Please contact Rutgers University Press, 106 Somerset Street, New Brunswick, NJ 08901.
The only exception to this prohibition is “fair use” as defined by U.S. copyright law.
Visit our website: http://rutgerspress.rutgers.edu
Contents
Foreword: Too Long Too Short
Mark Vonnegut, MD
Acknowledgments
Introduction: The Why, the What, and the How of the
Medical/Health Humanities
Therese Jones, Delese Wear, and Lester D. Friedman
Part I. Disease and Illness
Chapter 1. Being a Good Story: The Humanities as Therapeutic
Practice
Arthur W. Frank
Chapter 2. Illuminating the It, Thee, and We of Disease and
Illness: The Metamorphosis and Related Works
David H. Flood and Rhonda L. Soricelli
Chapter 3. “This Weird, Incurable Disease”: Competing Diagnoses
in the Rhetoric of Morgellons
Lisa Keränen
Chapter 4. My Quest for Health
Michael Sappol and Shelley Wall
Part II. Disability
Chapter 5. Disability in Two Doctor Stories
Martha Stoddard Holmes
Chapter 6. Music and Disability
Joseph N. Straus
Chapter 7. American Narrative Films and Disability: An Uneasy
History
Martin F. Norden
Chapter 8. Standout
Lisa I. Iezzoni
Part III. Death and Dying
Chapter 9. When the Doctor Is Not God: The Impact of Religion
on Medical Decision Making at the End of Life
Felicia Cohn
Chapter 10. Postmodern Death and Dying: A Literary Analysis
Martha Montello and John Lantos
Chapter 11. Second Degree Block: Poem and Commentary
Amy Haddad
Part IV. Patient-Professional Relationships
Chapter 12. Social Studies: The Humanities, Narrative, and the
Social Context of the Patient-Professional Relationship
Rebecca Garden
Chapter 13. Humanities and the Medical Home
Mark Clark, Howard Brody, and Rebecca Hester
Chapter 14. Occupational Medicine
Jack Coulehan
Part V. The Body
Chapter 15. The Virtues of the Imperfect Body
Rosemarie Tong
Chapter 16. Seeing Bodies in Pain
Sander L. Gilman
Chapter 17. Public Fetuses
Bernice L. Hausman
Chapter 18. More Body: A Performance for Five (or More) Bodies
Gretchen A. Case
Part VI. Gender and Sexuality
Chapter 19. Adult Intake Form
Allan Peterkin
Chapter 20. What Is Sex For? or, The Many Uses of the Vag
Alice Dreger
Chapter 21. “I Always Prefer the Scissors”: Isaac Baker Brown
and Feminist Histories of Medicine
Marjorie Levine-Clark
Chapter 22. in the Health Humanities: A New Approach to Sex
and Gender Education
Susan M. Squier
Chapter 23. I Am Gula, Hear Me Roar: On Gender and Medicine
Rafael Campo
Part VII. Race and Class
Chapter 24. Listening as Freedom: Narrative, Health, and Social
Justice
Sayantani DasGupta
Chapter 25. Race and Mental Health
Jonathan M. Metzl
Chapter 26. Law’s Hand in Race, Class, and Health Inequities: On
the Humanities and the Social Determinants of Health
Daniel Goldberg
Chapter 27. The Rooms of Our Souls
Maren Grainger-Monsen
Part VIII. Aging
Chapter 28. “Old Age Isn’t a Battle, It’s a Massacre”: Reading
Philip Roth’s Everyman
Thomas R. Cole and Benjamin Saxton
Chapter 29. “Do You Remember Me?” Constructions of
Alzheimer’s Disease in Literature and Film
E. Ann Kaplan
Chapter 30. Love in the Time of Dementia
Jerald Winakur
Part IX. Mental Illness
Chapter 31. Narrating Our Sadness, with a Little Help from the
Humanities
Brad Lewis
Chapter 32. Teaching Narratives of Mental Illness
Anne Hudson Jones
Chapter 33. Community Psychiatry and the Medical Humanities
Michael Rowe
Chapter 34. Culpability
Ian Williams
Part X. Spirituality and Religion
Chapter 35. Rites of Bioethics
Tod Chambers
Chapter 36. Health and Humanities: Spirituality and Religion
Raymond C. Barfield and Lucy Selman
Chapter 37. Scientia Mortis and the Ars Moriendi: To the Memory
of Norman
Jeffrey P. Bishop
Chapter 38. Meditations of an Anesthesiologist: Poem and
Commentary
Audrey Shafer
Part XI. Science and Technology
Chapter 39. Andromeda’s Futures: A Story of Humanities,
Technology, Science, and Art
Catherine Belling
Chapter 40. Knowing and Seeing: Reconstructing Frankenstein
Paul Root Wolpe
Chapter 41. A Brief History of Love: A Rationale for the History
of Epidemics
Allison B. Kavey
Chapter 42. Calcedonies
Jeff Nisker
Part XII. Health Professions Education
Chapter 43. Teaching Autism through Naturalized Narrative
Ethics: Closing the Divide between Bioethics and Medical
Humanities
Julie M. Aultman
