Disability and impairment : working with children and families

170 Pages·2008·0.637 MB·English

by  Peter Burke

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Disability and Impairment
Working with Children and Families
Peter Burke

Jessica Kingsley Publishers
London and Philadelphia
Firstpublishedin2008
byJessicaKingsleyPublishers
116PentonvilleRoad
LondonNl9JB,UK
and
400MarketStreet,Suite400
Philadelphia,PA19106,USA
www.jkp.com
Copyright ©PeterBurke2008
Allrightsreserved.Nopartofthispublicationmaybereproducedinanymaterialform
(includingphotocopyingorstoringitinanymediumbyelectronicmeansandwhetherornot
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Warning:Thedoingofanunauthorisedactinrelationtoacopyrightworkmayresultinboth
acivilclaimfordamagesandcriminalprosecution.
LibraryofCongressCataloginginPublicationData
Burke,Peter(PeterC.)
Disabilityandimpairment:workingwithchildrenandfamilies/Peter Burke.--1st
Americanpaperbacked.
p.cm.
Includesbibliographicalreferences.
ISBN978-1-84310-396-7(pb:alk.paper)1.Socialworkwithchildrenwithdisabilities.

2. Childrenwithdisabilities--Familyrelationships. I.Title.
HV888.B872008
362.4--dc22
2007033243
BritishLibraryCataloguinginPublicationData
ACIPcataloguerecordforthisbookisavailablefromtheBritishLibrary
ISBN9781843103967
ISBNpdfeBook9781846427534
PrintedandboundinGreatBritainby
AthenaeumPress,Gateshead,TyneandWear
Contents
ACKNOWLEDGEMENTS:APROFESSIONALANDPERSONALDEDICATION 7
Introduction 9
1 Disability and Impairment: Theory and Practice 11
2 Stigma, Need and Service Provision 27
3 The Impact of Childhood Disability: The Family
Experience 42
4 The Impact of Childhood Disability: Professional
Understanding 59
5 Support Across Early Life Transitions 74
6 Siblings of Disabled Children 88
7 Listening to Children with Special Needs 102
8 Support Groups for Children and Young People 116
9 A Positive Framework for Empowerment and Inclusion
in Social Care 128

APPENDIX:THERESEARCHPROCESS 143
REFERENCES 154
INDEX 163
Figures
Figure2.1 Circleofinfluence:stigma,associativedisadvantage
andpracticerelationships 32
Figure3.1 Ageatdiagnosisofdisability 44
Figure3.2 Typeofreporteddisabilityinchild 45
Figure4.1 Child-centredframework 66
FigureA.1 Familyinteractionmodelreflectingtheresearchstrategy 144
FigureA.2 Generalresearchdesign 149
FigureA.3 TheresultsfromTableA.1 153
Tables
Table7.1 SpecialneedsintheYorkshiregroup 106
TableA.1 Responses 152
Acknowledgements: A Professional
and Personal Dedication
Iwouldliketodedicatethisbooktothosepeopleandorganisationsthat
provided the opportunity to undertake a series of research studies that
madethetextpossible.Iremaingratefultothesourcefundingprovided
bytheChildren’sResearchFund,theNuffieldFoundation,andfunding
derived,viatheUniversityofHull,fromtheHigherEducationFunding
CouncilinEngland;withoutfinancialinputandencouragementduring
theinitialstagesofinvestigationtheresearchcouldnothavebeencom-
pleted.Iwasfortunatetobesupportedbythreecolleagues,KatyCigno,
SueMontgomeryandBenFell,whowereemployedatdifferenttimesas
research assistants and this is reflected in the publication of various
reports as the research progressed and developed.
However, the book would not have been written at all if my son, a
previouslyhealthyandlivelychild,hadnot,followingtreatmenttocure
leukaemia at the age of three in 1989, acquired severe brain injury,
leavinghimspastic–quadriplegic.Thisencounterwithdisabilitychanged
the life of my family. Further, my daughter, born during the time of her
brother’streatment,laterreflectedacaringattitudetowardsherbrother
whichinspiredthefiel dworkforthebookBrothersandSistersof Disabled
Children (Burke 2004). Her younger brother was born three months
prematurelyinNovember1990.He,attheageof18months,wasdiag-
nosed with spastic diplegia, and at the time of writing uses a powered
wheelchair to enable his mobility. My family experience motivated my
research interest in understanding the situation of other families living
with childhood disability.
Mypersonaldedicationistomyfamily,Heathermypartner,andour
children, Marc, Sammy and Joe.
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