Table Of ContentCaregiving
Research (cid:129) Practice (cid:129) Policy
Ronda C. Talley, Series Editor
An of fi cial publication of
The Rosalynn Carter Institute for Caregiving
For further volumes:
http://www.springer.com/series/8274
Ronda C. Talley Rhonda J.V. Montgomery
●
Editors
Caregiving Across
the Lifespan
Research Practice Policy
(cid:129) (cid:129)
Editors
Ronda C. Talley, PhD, MPH Rhonda J.V. Montgomery, PhD
Department of Psychology Helen Bader Endowed Chair in Applied
Western Kentucky University Gerontology
Bowling Green , KY, USA Helen Bader School of Social Welfare
University of Wisconsin Milwaukee
Milwaukee , WI, USA
ISSN 2192-340X ISSN 2192-3418 (electronic)
ISBN 978-1-4614-5552-3 ISBN 978-1-4614-5553-0 (eBook)
DOI 10.1007/978-1-4614-5553-0
Springer New York Heidelberg Dordrecht London
Library of Congress Control Number: 2012950360
© Springer Science+Business Media New York 2013
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To my grandparents, Jim F. and Vela
Booher McCoy, and Curtis Edward and
Mary Ashmore Talley, whose loving
care and support have meant so very
much to me.
Ronda C. Talley
This book is dedicated to my husband
Mike, who remains my constant source
of support.
Rhonda J.V. Montgomery
Editorial Board
Janai Lowenstein, MS
University of Oregon
David A. Mrazek, MD
Mayo Clinic
Lisa McElaney, MFA
Vida Health Communications, Inc.
Jan Blacher, PhD
University of California, Riverside
Lenore Behar, PhD
Child & Family Program Studies
Deryl Bailey, PhD
University of Georgia
Martha Kaufman, MS
Center for Child and Family Health - NC
Marleen Wong, MSW
University of Southern CA
Michael L. Handwerk, PhD
University of Texas
Glorisa Canino, PhD
University of Puerto Rico
Daniel Holland, PhD, MPH
The Neurobehavior Center of Minnesota
Jane Myers, PhD
Private Practice NewPort Beach CA
vii
viii Editorial Board
Donna Wagner, PhD
Towson University
Laurie Young
Older Women’s League (OWL)
Gema Hernandez, DPA
Aging and Cultural Consultants, Inc.
Judith Gonyea, PhD
Boston University
Sue Levkoff, ScD, SM, MSW
University of South Caroline College of Social Work
Bob Knight, PhD
University of Southern California
Karen Kaplan, ScD
Ovarian Cancer National Alliance
Ken Doka, PhD
College of New Rochelle
Series Foreword
From its inception in 1987, the Rosalynn Carter Institute for Caregiving (RCI) has
sought to bring attention to the extraordinary contributions made by caregivers to
their loved ones. I grew up in a home that was regularly transformed into a caregiv-
ing household when members of my family became seriously ill, disabled, or frail
with age, so my interest in the issue is personal. In my hometown of Plains, Georgia,
as in most communities across our country, it was expected that family members
and neighbors would take on the responsibility of providing care whenever illness
struck close to home. Delivering such care with the love, respect, and attention it
deserves is both labor-intensive and personally demanding. Those who do so repre-
sent one of this nation’s most signi fi cant yet underappreciated assets in our health
delivery system.
When the RCI began, “caregiving” was found nowhere in the nation’s health
lexicon. Its existence was not a secret but rather simply accepted as a fact of life. In
deciding on the direction and priorities of the new institute, we convened groups of
family and professional caregivers from around the region to tell their personal sto-
ries. As I listened to neighbors describe caring for aged and/or chronically ill or
disabled family members, I recognized that their experiences re fl ected mine. They
testi fi ed that while caregiving for them was full of personal meaning and signi fi cance
and could be extremely rewarding, it could also be fraught with anxiety, stress, and
feelings of isolation. Many felt unprepared and most were overwhelmed at times. A
critical issue in the “ fi eld” of caregiving, I realized, was the need to better under-
stand the kinds of policies and programs necessary to support those who quietly and
consistently care for loved ones.
With the aging of America’s Baby Boomers expecting to double the elderly pop-
ulation in the next 20 years, deinstitutionalization of individuals with chronic men-
tal illnesses and developmental disabilities, a rising percentage of women in the
workforce, smaller and more dispersed families, changes in the role of hospitals,
and a range of other factors, caregiving has become one of the most signi fi cant
issues of our time. Caregiving as an area of research, as a focus and concern of
policy making, and as an area of professional training and practice has reached a
new and unparalleled level of importance in our society and indeed globally.
ix
Description:Most scholars do not consider the long-term nature of caregiving, but rather focus on a specific developmental period (e.g., old age) or a specific disability (e.g., cancer). Yet the most important lessons about caregiving may occur at any age, regardless of disabilities or other limitations. Caregi
