Bioethics Beyond Altruism : Donating and Transforming Human Biological Materials

353 Pages·2017·3.37 MB·English

by  Shaw

B I O E T H I C S
B E Y O N D
A L T R U I S M
Donating & Transforming Human Biological Materials
EDITED BY RHONDA M. SHAW
Bioethics Beyond Altruism
Rhonda M. Shaw
Editor
Bioethics Beyond
Altruism
Donating and Transforming Human
Biological Materials
Editor
Rhonda M. Shaw
Victoria University of Wellington
Wellington, New Zealand
ISBN 978-3-319-55531-7 ISBN 978-3-319-55532-4 (eBook)
DOI 10.1007/978-3-319-55532-4
Library of Congress Control Number: 2017937276
© The Editor(s) (if applicable) and The Author(s) 2017
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Acknowledgements
I am grateful to all the authors of this volume for their original con-
tributions and commitment to this project. I also wish to acknowledge
the scholars who generously acted as peer reviewers for the chapters in
this volume. Your insights and constructive feedback have been invalu-
able. Thanks are due to Carol Bartle (Te Puawaitanga ki Otautahi Trust,
New Zealand), Linda Bennett (University of Melbourne, Australia),
Sharyn Graham Davies (Auckland University of Technology, New
Zealand), Gill Haddow (University of Edinburgh, Scotland), Tonya
Kara (Auckland City Hospital, New Zealand), Laura Machin (Lancaster
University, England), Dominique Martin (Deakin University,
Australia), Meredith Nash (University of Tasmania, Australia), Amrita
Pande (University of Cape Town, South Africa), Beatriz Reyes-Foster
(University of Central Florida, USA), Maria Olejaz Tellerup (University
of Copenhagen, Denmark), and Kristin Zeiler (Linköping University,
Sweden). Finally, special thanks to Ursula Robinson-Shaw for her copy
editing assistance, and to Victoria University of Wellington for funding
to help complete the final editing stages of the collection.
v
Contents
Part I Introduction
1 Bioethics Beyond Altruism 3
Rhonda M. Shaw
Part II Stem Cells
2 Dead Human Bodies and Embryos: Commonalities
and Disparities in Ethical Debate 35
D. Gareth Jones
3 The Immortal Life of Ethics? The Alienation of Body
Tissue, Ethics and the Informed Consent Procedure Within
Induced Pluripotent Stem Cell Research 61
Casimir MacGregor, Tristan McCaughey, Megan Munsie,
Alice Pébay and Alex Hewitt
vii
viii Contents
4 On the Everyday Ethics of Stem Cell Therapies
in India 89
Nayantara Sheoran Appleton and Aditya Bharadwaj
Part III Assisted Human Reproduction
5 Towards an Understanding of Embryo Donation
in New Zealand: The Views of Donors and
Recipients 115
Sonja Goedeke and Ken Daniels
6 Ethics for Embryologists 141
Ruth P. Fitzgerald and Michael Legge
7 Beyond Altruism: A Case for Compensated
Surrogate Motherhood 165
Ruth Walker and Liezl van Zyl
Part IV Organ Donation and Transplantation
8 Keeping it in the Family: Debating the Bio-intimacy
of Uterine Transplants and Commercial Surrogacy 189
Charlotte Kroløkke and Michael Nebeling Petersen
9 Gift-of-life? The Psychosocial Experiences of Heart,
Liver and Kidney Recipients 215
Geraldine O’Brien
10 Organ Donation Practices and End-of-life Care:
Unusual Bedfellows or Comfortable Companions? 239
Maureen Coombs and Martin Woods
11 Valued Matter: Anthropological Insights on the
(Bio)Political Economy of Organ Exchange 265
Ciara Kierans
Contents ix
Part V Breastmilk Exchange
12 Towards Social Maternity: Where’s the Mother?
Stories from a Transgender Dad as a Case Study
of Human Milk Sharing 291
Fiona Giles
13 Bio-Intimate Economies of Breastmilk Exchange:
Peer-Milk Sharing and Donor Breastmilk in the
NICU 319
Rhonda M. Shaw and Maggie Morgan
Index 343
Editor and Contributors
About the Editor
Rhonda M. Shaw is Associate Professor in Sociology at Victoria University
of Wellington, New Zealand. Her research interests include the sociology of
morality and ethics, and empirical research on assisted human reproduction,
breastmilk sharing, and organ and tissue exchange.
Contributors
Nayantara Sheoran Appleton Victoria University of Wellington,
Wellington, New Zealand
Aditya Bharadwaj Graduate Institute of International and
Development Studies, Geneva, Switzerland
Maureen Coombs Victoria University of Wellington, Wellington, New
Zealand
Ken Daniels University of Canterbury, Christchurch, New Zealand
Ruth P. Fitzgerald University of Otago, Dunedin, New Zealand
xi
xii Editor and Contributors
Fiona Giles University of Sydney, Sydney, Australia
Sonja Goedeke Auckland University of Technology, Auckland, New
Zealand
Alex Hewitt Menzies Institute of Medical Research, University of
Tasmania, Tasmania, Australia
D. Gareth Jones University of Otago, Dunedin, New Zealand
Ciara Kierans Department of Public Health and Policy, University of
Liverpool, Liverpool, England
Charlotte Kroløkke University of Southern Denmark, Odense,
Denmark
Michael Legge University of Otago, Dunedin, New Zealand
Casimir MacGregor Monash University, Melbourne, Australia
Tristan McCaughey Monash University, Melbourne, Australia
Maggie Morgan Wellington Regional Hospital, Wellington, New Zealand
Megan Munsie University of Melbourne, Melbourne, Australia
Geraldine O’Brien Murdoch University, Perth, WA, Australia
Michael Nebeling Petersen University of Southern Denmark, Odense,
Denmark
Alice Pébay University of Melbourne, Melbourne, Australia
Rhonda M. Shaw Victoria University of Wellington, Wellington, New
Zealand
Ruth Walker University of Waikato, Hamilton, New Zealand
Martin Woods Victoria University of Wellington, Wellington, New
Zealand
Liezl van Zyl University of Waikato, Hamilton, New Zealand