Assessing children's well-being : a handbook of measures

324 Pages·2004·13.536 MB·English

by  Sylvie Naar-King, Deborah A Ellis, Maureen A Frey

Assessing Children's
Well-Being
A Handbook of Measures
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Assessing Children's
Weil-Being
A Handbook of Measures
Sylvie Naar-King, PhD
Deborah A. Ellis, PhD
Wayne State University
School of Medicine
Maureen A. Frey, PhD, RN
Children's Hospital of Michigan
LAWRENCE ERLBAUM ASSOCIATES, PUBLISHERS
2004 Mahwah, New Jersey London
h
No part of this book may be reproduced in any form, by photostat, microfilm,
retrieval system, or any other means, without prior written permission of the
publisher.
Lawrence Erlbaum Associates, Inc., Publishers
10 Industrial Avenue
Mahwah, NJ 07430
Cover design by Sean Sciarrone
Library of Congress Cataloging-in-Publication Data
Child assessment in pediatric settings : handbook of measures for health care
professionals / [edited by] Sylvie Naar-King, Deborah A. Ellis, Maureen Frey.
p. cm.
Includes bibliographical references and index.
ISBN 0-8058-3173-8 (hbk.: alk. paper)
1. Children—Medical examinations—Handbooks, manuals, etc.
2. Children—Diseases—Diagnosis—Handbooks, manuals, etc. 3. Child
development—Testing—Handbooks, manuals, etc. 4. Medical screening—
Methodology—Handbooks, manuals, etc. I. Naar-King, Sylvie. II. Ellis,
Deborah A. III. Frey, Maureen A.
RJ50.C479 2003
618.92W5—dc21 2002041680
Books published by Lawrence Erlbaum Associates are printed on acid-free paper,
and their bindings are chosen for strength and durability.
Printed in the United States of America
10 9 8 7 6 5 4 3 21
To our families and our mentor, Patricia T. Siegel
S.N.K. and D.A.E.
To Jennifer, Andy, Shannon, and Sam
M.A.F.
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Primary Authors
Sylvie Naar-King, Department of Psychiatry and Behavioral Neuro-
sciences, Wayne State University School of Medicine, Detroit, Michigan
Deborah A. Ellis, Department of Psychiatry and Behavioral Neuro-
sciences, Wayne State University School of Medicine, Detroit, Michigan
Maureen A. Frey, PhD, Department of Nursing Administration, Chil-
dren's Hospital of Michigan, Detroit, Michigan
Contributing Authors
Ronald T. Brown, PhD, College of Health Professions, Medical University
of South Carolina, Charleston, South Carolina
Dennis Drotar, PhD, Department of Pediatrics, Rainbow Babies and Chil-
dren's Hospital and Case Western Reserve University School of Medi-
cine, Cleveland, Ohio
Sheila M. Eyberg, PhD, ABPP, Department of Clinical and Health Psy-
chology, University of Florida, Gainesville, Florida
Michelle Macias, MD, Department of Pediatrics, Medical University of
South Carolina, Charleston, South Carolina
Jocelyn McCrae, PhD, Department of Hematology/Oncology, Children's
Hospital of Michigan, Detroit, Michigan
vii
viii AUTHORS
Lilless McPherson Shilling, PhD, College of Health Professions, Medical
University of South Carolina, Charleston, South Carolina
Arthur Robin, PhD, Department of Psychiatry and Behavioral Neuro-
sciences, Wayne State University School of Medicine, Detroit, Michigan
Conway F. Saylor, PhD, Department of Psychology, The Citadel, Charles-
ton, South Carolina
Patricia T. Siegel, PhD, Department of Psychiatry and Behavioral Neuro-
sciences, Wayne State University School of Medicine, Detroit, Michigan
Anthony Spirito, PhD, Department of Psychiatry and Human Behavior,
Brown Medical School, Providence, Rhode Island
Branlyn E. Werba, PhD, Department of Psychology, Children's Hospital
of Philadelphia, Pennsylvania
Contents
Contributors vii
Preface xiii
Chapter 1 Health Status and Quality of Life 1
Introduction by Dennis Drotar 1
Child Health and Illness Profile 4
Child Health Questionnaire 7
Functional Disability Inventory 9
Functional Status II (R) 11
Functional Status Questionnaire 13
Health And Daily Living—Youth Form 15
Pediatric Evaluation of Disability Inventory 17
Pediatric Quality of Life Inventory 19
WeeFIM 21
Chapter 2 Adherence 27
Introduction by Maureen A. Frey 27
Daily Phone Diary 29
Family Responsibility Questionnaire 31
Medication Electronic Monitoring System 33
Medical Compliance Incomplete Stories Test 35
Twenty-Four-Hour Recall Interview 37
Chapter 3 Pain Management 41
Introduction by Jocelyn McCrae 41
Bieri Faces Scale 43
Child-Adult Medical Procedure Interaction Scale-Revised 45
Children's Hospital of Eastern Ontario Pain Scale 46
ix