American Association of Univ. Affiliated Programs for a federal discretionary program to help states

154 Pages·2007·3.5 MB·English

DOCUMENT RESUME
EC 230 573
ED 318 171
Smith, Barbara, Ed.
AUTHOR
Mapping the Future for Children with Special Needs:
TITLE
P.L. 99-457.
American Association of Univ. Affiliated Programs for
INSTITUTION
the Developmentally Disabled, Washington, DC.; Iowa
Univ., Iowa City.; Utah State Univ., Logan.;
Washington Univ., Seattle.; Wisconsin Univ.,
Madison.
Administration on Developmental Disabilities (DHHS),
SPONS AGENCY
Washington, D.C.
PUB DATE
88
NOTE
155p.
AVAILABLE FROM University of Iowa, 5295 Hospital School, Iowa City,
IA 52242 ($3.50, quantity discount available).
Guides - Non-Classroom Use (055)
PUB TYPE
MF01/PC07 Plus Postage.
EDRS PRICE
Administration; *Delivery Systems; *Disabilities;
DESCRIPTORS
*Early Intervention; Evaluation; Family Programs;
*Federal Legislation; Federal Programs; Handicap
Identification; Infants; Needs Assessment; Personnel
Needs; Preschool Education; *Program Development;
Program Implementation; Statewide Planning;
Toddlers
*Education of the Handicapped Act Amendments 1986
IDENTIFIERS
ABSTRACT
This volume addresses the needs of decision-makers
involved in implementing Public Law 99-457, Part H, which establishes
a federal discretionary program to help states plan and implement a
comprehensive, coordinated interdisciplinary program of early
intervention services for children from birth through age 2. Chapter
titles include the following: "P.L. 99-457: A Map for Planning
Statewide Early Intervention," "What Children and Families Will Be
Served through the System ?," "How Will These Children and Families Be
Brought into the System?," "What Strengths and Needs Do These
Children and Families Have? Evaluation," "How Will the Needs of
Children and Families Be Met? Establishing Goals, Identifying a Case
Manager, Services, and Financing Services," "What Personnel Wi:1,1 Be
Needed to Provide These Resources and Services and How Will They Be
Prepared?," and "What Kind of Management and Monitoring Is Needed to
See That the Goals of Early Intervention Are Accomplished?" A list of
references accompanies each chapter. (JDD)
***********************************************************************
Reproductions supplied by EDRS are the best that can be made
from the original document.
*******************************************************,.***************
U.S. DEPARTMENT OF EDUCATION
EA( e
at Educational Research and Improvement
ED CATIONAL RESOURCES INFORMATION
CENTER (ERIC)
This dOcurni,n1 has been reproduced as
received from the person or o;ganization
Mapping
originating it
Li Minor changes have been made to improve
reproduction Quality
Points of view or opinions slated in this docu
men! do not necessarily represent official
OERI position or poky
the Future
for Children with
Special Needs
P.L. 99-457
1'
"PERMISSION TO REPRODUCE THIS
MATERIAL HAS BEEN GRANTED BY
e
elk
1,,:frt
TO THE EDUCATIONAL RESOURCES
INFORMATION CENTER (ERIC)."
Administration
on Developmental Disabilities
BEST COP( AVAltri, E
Mapping the Future
for Children with Special Needs
P.L. 99-457
This monograph was developed as a joint effort of University
Affiliated Programs and staff at the following sites:
Utah State University
The University of Iowa
Glendon Casto, Ph.D.
Alfred Healy, M.D.
Nancy Immel, O.T.R.
Barbara Smith, M.S.
Mark Innocenti, M.A.
Karl White, Ph.D.
The University of Wisconsin-Madison
The University of Washington
Rita Hohlstein, M.S., O.T.R.
Patti Biro, Ed.M.
Mariellen Kuehn, Ph.D.
Michael Guralnick, Ph.D.
Cecilia McCormick, Ph.D.
Darbara Smith, The University of Iowa
Editor
t.
O 1988 The University of Iowa
Acknowledgements
Disabilities
We would like to thank first the Administration on Developmental
particularly Ray
for their support of the Early Intervention Consortium ilroject,
Special Projects.
Sanchez, Director, Program Development Division and Judy Moore,
would also like
At the American Association of University Affiliated Programs, we
Associate Director Elaine Eklund and
to thank Executive Director William Jones,
consortium project.
Anne Rudigier who has been a special assistant for the
gather feedback and
In late January, a forum was held in Washington, D.C. to
We would like to thank those
comments on the proposed direction for this project.
Ph.D., National Early
who attended those very useful sessions, including Don Bailey,
Coughlin, Ph.D.,
Intervention Personnel Preparation Program/Chapel Hill; Pam
Administration on
Administration on Children, Youth and Families; Jane Deweerd,
Education
Children, Youth and Families; James Hamilton, Ph.D., Office of Special
Early
Programs; Barbara Hanft, Ph.D., American Occupational Therapy Association
M.D., Bureau of
Intervention In-Service Education Project; Merle McPherson,
James Papai, Ph.D.,
Maternal and Child Health and Resources Development;
Development; Patti Place,
Bureau of Maternal and Child Health and Resources
Systern/Chapel Hill; James
Ph.D., National Early Childhood Technical Assistance
Health Program Directors;
Quilty, M.D., Association of State Maternal and Child
Terri Shelton,
Emily Schrag, M.S.W., National Center for Clinical Infant Programs;
Robert Stovenour, Deputy
Ph.D., Association for the Care of Children's Health;
Commissioner, Administration on Developmental Disabiliti?s.
production was carried
The monograph framework development, editing arm
The early intervention team at the Grant Wood
out at the University of Iowa.
spend time with us
Area Education Agency in Iowa City were kind enough to
psychologist
reviewing the project including occupational therapist Gloria Brandt,
Dawn Nylind, and
Charlie Bursch, social worker Mary McCue, parent-child educator
the team's administrator Reid Zehrbach.
discuss P.L.
We also invited a group of parents to The University of Iowa to
of their comments
99-457 and the orientation of this project specifically, and many
We would like to thank those individuals who
are included in this manuscript.
iii
spent the day with us; Suzanne Bennett, Gail Carp, Pamela
Johnson, Marsha Peter.
,
Jule Reynolds, Merle Steenson, and Debra
Stewart.
Finally, we would like
to thank production staff at
the Iowa University
Affiliated Program.
Nancy Bradshaw, Suzanne Erenberger and
Sharon Gaffney for
their competent manuscript preparation,
and design a list Lori Popp for her special
talents in designing the
cover and the book format.
It is our pleasure to offer this Early
Intervention Consortium Project monograph
to the wide variety of people involved in carrying
out the new national commitment
to services for very young children with special needs and their
families.
Making a
contribution to early intervention efforts is
an important part of the Administration
on Developmental Disabilities (ADD) mission to
encourage the independence,
productivity and community integration of
people with developmental disabilities. The
University Affiliated Program network which, along
with Protection and Advocacy
and State Planning Councils, is
a major component of the ADD program,
was an
excellent resource for developing this
For the past twenty-five
project.
years, the
UAPs have contributed exemplary clinical
services, research, training and information
dissemination activities with
a strong emphasis on the
interdisciplinary approach
especially important with services
to very young children. We
are hopeful that this
monograph will be of genuine assistance
in the important tasks ahead.
Terrence Dolan, Ph.D., Director, University
of Wisconsin UAP
Marvin Fifield, Ed.D., Director, Utah
State University UAP
Michael Guralnick, Ph.D., Director,
University of Washington UAP
Alfred Healy, M.D., Director, University
of Iowa UAP
iv
Introduction
This publication developed by the American Association of University Affiliated
Programs (AAUAP) Early Intervention Consortium project is intended to address the
needs of decision-makers involved in implementing P.L. 99-457, Part H, by providing
a practical outline for decisions that need to be made related to the law, and
providing material on issues of specific decision-making concern, including the
populations to be served, childfind efforts, family evaluations, services, funding,
training and administrative issues.
Public Law 99-457, the Education of Handicapped Act Amendments of 1986,
that has been made to
as a symbol of the great progress
date in
serves
understanding the early development of children with disabilities and how to
also an outline of the task of
The law is
influence that development positively.
translating what has been learned into services that can be shared broadly with
In addition, the law supports the continuance
those children and families in need.
of the
of learning about what
in promoting the
effective
most
proLess
is
development of the very young child with disabilities.
Part H of the law establishes a new federal discretionary program to help states
plan and i,,np lemma a comprehensive, coordinated interdisciplinary program of early
intervention services for children from birth through age 2.
Before the passage of
only a handful of states had mandatory services
children vOth
for
bill,
this
Timelines on the implementation of an entire new system of
disabilities from birth.
early intervention services will be challenging in the extreme, but it will be of great
importance that the information gathering and planning stages of implementation not
be neglected.
Involvement of ADD
it has a new and heartening
While P.L. 99-457 is an amended education bill,
focus on interagency cooperation in carrying out services for children with special
In ADD's own reauthorization legislation, P.L. 100-146 The Developmental
needs.
Disabilities Assistance and Bill of Rights Act, many are.-s that related directly to
P.L. 100-146 includes early intervention as ore
P.L. 99-457 have been strengthened.
of its priority funding
areas.
Case management, which plays
a major role in the
implementation of P.L. 99-457
also a priority
services,
area of ADD funding.
is
There is an emphasis
on supporting the role of the family in
assisting persons with
developmental disabilities,
on interagency cooperative
efforts and a continued
emphasis on interdisciplinary
training efforts which will be
a major component of
state early intervention personnel development
plans.
As an expression of these
common themes, ADD funded the Early
Intervention
Consortium Project in July of
1987 through its
University Affiliated Program
component. The UAP component of the ADD
efforts had its origins
some 25 years
ago and now is a network of
some 49 programs at 55 sites.
Thirty-five of these
programs are funded through ADD, 7
are ADD satellite programs and 21 receive
Bureau of Maternal and Child
Health and Resources Development
training funds.
they share an ongoing
Together,
commitment to
increasing the
productivity,
independence and community
of people with
integration
disabilities
through
interdisciplinary training, exemplary
services, technical assistance
and dissemination of
information.
Serving the needs of the
very young child with special needs has
been a focus
of UAP efforts since the
The Early Intervention
begintsing.
Consortium included
four University Affiliated
Projrams with special interest
and expert!se in early
intervention:
The University of Iowa, Utah
State
the University of
University,
Washington and the University of
Wisconsin-Madison.
The specific contributions from
the consortium project members
were organized
around the basic questions that
those involved in planning
the implementation of
P.L. 99-457 will have
to ask:
What children and families will
be served through the system?
How will these children and
families be reached by the
system?
What strengths and needs do
these children and fa. lilies have?
What resources and services
will help these childrol and
families meet their
needs?
What personnel
are needed to provide these
resources and services and how
will they be prepared?
What kind of management
and monitoring is needed
to see that the goals of
early intervention
are accomplished?
We have outlined
some of the major issues that will have
to be considered in
answering these questions for
each state, and provide examples
of how the question
vi
has been answered in some programs as well as resources for finding out more
about the issues.
The materials have been targeted specifically for a meeting in July of 1988
planned by the Federal Interagency Coordinating Council, which will be attended by
We hope that,
many people involved directly in the implementation process.
in
its use for that group,
will become part of the growing body of
addition to
it
resources that states can use in implementing this important system of resources.
Table of Contents
Acknowledgements
iii
Introduction
P.L. 99-457: A Map for Plmning Statewide Early
Chapter 1
Intervention
1
Chapter 2
What children and families will be served through
the system'?
9
How will these children and families be brought into
Chapter 3
the system'?
15
What strengths and needs do these children and
Chapter 4
families have? Evaluation
31
How will the needs of children and families be met?
Chapter 5
Establishing goals, identifying a case manager
45
How will the needs of children and families be met?
Chapter 6
Services
53
How will the needs of children and families be met?
Chapter 7
Financing Services
73
What personnel will be needed to provide these
Chapter 8
resources and services and how will they be prepared?
99
What kind of management and monitoring is needeu to see
Chapter 9
that the goals of early intervention are accomplished')
127
ix