Psychological, Emotional, Social and Cognitive Aspects of Implantable Cardiac Devices

297 Pages·2017·5.14 MB·English

by  Riccardo Proietti, Gian Mauro Manzoni, Giada Pietrabissa, Gianluca Castelnuovo (eds.)

Psychological, Emotional,
Social and Cognitive
Aspects of Implantable
Cardiac Devices
Riccardo Proietti
Gian Mauro Manzoni
Giada Pietrabissa
Gianluca Castelnuovo
Editors
123
Psychological, Emotional, Social and Cognitive
Aspects of Implantable Cardiac Devices
Riccardo Proietti • Gian Mauro Manzoni
Giada Pietrabissa • Gianluca Castelnuovo
Editors
Psychological, Emotional,
Social and Cognitive Aspects
of Implantable Cardiac
Devices
Editors
Riccardo Proietti Gian Mauro Manzoni
Cardiac Center, Morriston Hospital eCampus University Faculty of Psychology
University of Swansea Novedrate (Como)
Swansea Italy
UK
Gianluca Castelnuovo
Giada Pietrabissa Department of Psychology
Department of Psychology Università Cattolica del Sacro Cuore
Università Cattolica del Sacro Cuore Milano
Milano Italy
Italy
ISBN 978-3-319-55719-9 ISBN 978-3-319-55721-2 (eBook)
DOI 10.1007/978-3-319-55721-2
Library of Congress Control Number: 2017945678
© Springer International Publishing AG 2017
This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of
the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation,
broadcasting, reproduction on microfilms or in any other physical way, and transmission or information
storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology
now known or hereafter developed.
The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication
does not imply, even in the absence of a specific statement, that such names are exempt from the relevant
protective laws and regulations and therefore free for general use.
The publisher, the authors and the editors are safe to assume that the advice and information in this book
are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the
editors give a warranty, express or implied, with respect to the material contained herein or for any errors
or omissions that may have been made. The publisher remains neutral with regard to jurisdictional claims
in published maps and institutional affiliations.
Printed on acid-free paper
This Springer imprint is published by Springer Nature
The registered company is Springer International Publishing AG
The registered company address is: Gewerbestrasse 11, 6330 Cham, Switzerland
Preface
In 1989 I was a young research registrar at St George’s Hospital London. These
were exciting times as within a few months of my arrival we started implanting the
first generation of transvenous implantable defibrillator (ICD), which no longer
required a thoracotomy. This change had the potential to make ICD therapy avail-
able to a much wider group of patients. Psychological and emotional issues were
not uppermost in our minds as we grappled with the technical challenges of these
new devices with their limited shock outputs and sometimes marginal defibrillation
thresholds. However, within two years I had lost two patients, one teenager to a
gruesome suicide following an appropriate shock therapy, and another older patient
to severe depression following over 40 inappropriate shocks for atrial fibrillation.
Following these events the importance of psychological and emotional factors in
ICD patients was very clear to me and my practice since then has always included
pre-implant counselling and access to post-implant support.
Since the 1990s there have been many technical developments in ICD therapy
including biphasic shocks, improved detection algorithms, vastly increased arrhyth-
mia event storage capability, and remote monitoring. However the risk of inappro-
priate therapies, whilst reduced, remains and appropriate shock therapy is still the
main means of sudden death prevention by the device. In addition the occurrence of
a number of high profile manufacturer’s advisories, relating to leads and devices,
has highlighted concerns about reliability. That the ICD remains an imperfect ther-
apy, preventing sudden death only by waiting for it to be imminent and then striking
with shock therapy, is not in question.
Meanwhile the indications for device therapy have broadened with more than a
million people worldwide living with an ICD. Many of these new ICD recipients are
receiving the devices for primary prevention of sudden death having never suffered
an arrhythmia, their potential mortality drawn starkly to their attention. Many of
these patients will survive for decades as their risk of sudden death is low. To allow
them to continue to lead active working, social and sexual lives requires careful
consideration of and preparation for the impact of ICD therapy. The impact of
device therapy spreads far beyond the patient, affecting partners and families too.
v
vi Preface
In this book Proietti and colleagues have brought together a wide range of exper-
tise in Psychological, Emotional, Social and Cognitive Aspects of Implantable
Cardiac Device therapy to create a standard reference on this important topic. We
owe it to all of our implantable device patients to consider this vital aspect of their
care.
Morriston, Swansea, UK Mark Anderson
Contents
1 Cognitive Functioning in Implantable Cardioverter Defibrillator/
Pacemaker Recipients . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1
Mauro Feola and Marzia Testa
2 Neuropsychological Functioning After Implantable
Cardioverter-Defibrillator Surgery . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13
Abdullah Alabdulgader
3 Psychosocial Concerns in Patients Living with an Implantable
Cardioverter Defibrillator . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 47
Ingela Thylén
4 Comparison of Health-Related Quality of Life Between Patients
with Implantable Cardioverter Defibrillators
and Pacemaker Recipients . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 67
Alena Kajanová, Martin Eisenberger, and Zuzana Řimnáčová
5 Psychological Indices in Patients After Multiple Shocks
with Implantable Cardioverter Defibrillator (ICD)
and Psychotherapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 85
Ludmila Peregrinova and Jochen Jordan
6 Sexual Function in Adults with Implantable
Cardioverter-Defibrillators/Pacemaker Recipients . . . . . . . . . . . . . . . 101
Moshe Rav Acha and Tal Hasin
7 Critical Appraisal of Cardiac Implantable Electronic Devices:
Complications and Management . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 113
Arjun D. Sharma
8 Psychological Effects of Device Recalls and Advisories in Patients
with Implantable Cardioverter Defibrillators . . . . . . . . . . . . . . . . . . . 123
Bianca D’Antono, Teresa Kus, and Audrey Charneux
vii
viii Contents
9 ICD in Children and Youth . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 149
Abdullah Alabdulgader
10 Psycho-educational Support Interventions for Patients
with an Implantable Cardioverter Defibrillator . . . . . . . . . . . . . . . . . 181
Giada Pietrabissa, Francesco Borgia, Gian Mauro Manzoni,
Riccardo Proietti, Luca Alessandro Gondoni, Mariella Montano,
Ferruccio Nibbio, Anna Maria Titon, Gian Andrea Bertone,
and Gianluca Castelnuovo
11 eHealth and mHealth to Manage Distress in Patients
with an Implantable Cardioverter- Defibrillator . . . . . . . . . . . . . . . . . 199
Gianluca Castelnuovo, Giada Pietrabissa, Gian Mauro Manzoni,
Francesco Borgia, Gian Andrea Bertone, Mariella Montano,
Ferruccio Nibbio, Anna Maria Titon, Luca Alessandro Gondoni,
and Riccardo Proietti
12 Quality of Life of Patients Over 80 Years Old with Implantable
Cardioverter-Defibrillators . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 209
Ahmed AlTurki, Riccardo Proietti, and Francesco Borgia
13 Importance of Counselling ICD Patients: The Role of Cardiac
Physiologists . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 219
Parisha Khan
14 The Patient’s Informal Caregiver . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 231
Mitzi M. Saunders
15 Ethical Aspects of Withdrawing Cardiac Device Therapy
at End of Life . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 243
Vilma Torres and William R. Lewis
16 Natural Kinds, Similarity, and Individual Cases: Ontological
Presuppositions and Ethical Implications . . . . . . . . . . . . . . . . . . . . . . 261
Paolo Valore
17 Patient ICD Support Groups . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 271
Wendy Churchouse
18 Living with an Implantable Cardioverter Defibrillator: The Road
to Resilience . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 279
Serena Santagostino, Giada Pietrabissa, Gianluca Castelnuovo,
and Francesco Borgia
Index . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 291
Contributors
Abdullah Alabdulgader, MD, DCH (I), DCH (Edin.). Prince Sultan Cardiac
Center, Al Hassa, Saudi Arabia
Ahmed AlTurki, M.D. McGill University Health Center, Montreal, QC, Canada
Gian Andrea Bertone Division of Cardiological Rehabilitation, Ospedale San
Giuseppe, IRCCS Istituto Auxologico Italiano, Oggebbio (VCO), Italy
Francesco Borgia Department of Psychology, Università Cattolica del Sacro
Cuore, Milan, Italy
Gianluca Castelnuovo Psychology Research Laboratory, Ospedale San
Giuseppe, IRCCS Istituto Auxologico Italiano, Oggebbio (VCO), Italy
Department of Psychology, Università Cattolica del Sacro Cuore, Milan, Italy
Audrey Charneux, M.A. Research Center, Montreal Heart Institute, Montréal,
QC, Canada
Wendy Churchouse, BEM, MSc, RGN, Dip N, En(G). Cardiac Centre,
Morriston Hospital, Swansea, UK
Bianca D’Antono, Ph.D. Research Center, Montreal Heart Institute, Montréal,
QC, Canada
Department of Psychology, Université de Montréal, Montréal, QC, Canada
Martin Eisenberger, M.D., Ph.D. Faculty of Health and Social Studies,
University of South Bohemia in České Budějovice, České Budějovice, Czech
Republic
Mauro Feola, M.D., F.E.S.C. Cardiovascular Rehabilitation-Heart Failure Unit,
Ospedale SS Trinità, Fossano, CN, Italy
Luca Alessandro Gondoni Division of Cardiological Rehabilitation, Ospedale
San Giuseppe, IRCCS Istituto Auxologico Italiano, Oggebbio (VCO), Italy
ix
x Contributors
Tal Hasin, M.D. Department of Cardiology, Shaare Zedek Medical Center,
Jerusalem, Israel
Jochen Jordan Department of Psychocardiology, Kerckhoff Clinic, Bad
Nauheim, Germany
Alena Kajanová, Ph.D. Faculty of Health and Social Studies, University of
South Bohemia in České Budějovice, České Budějovice, Czech Republic
Teresa Kus, M.D., Ph.D. Cardiology Department, Hôpital du Sacré-Cœur de
Montréal, Montréal, QC, Canada
Pharmacology Department, Université de Montréal, Montréal, QC, Canada
William R. Lewis, M.D. Department of Medicine, MetroHealth Campus of Case
Western Reserve University, Cleveland, OH, USA
Gian Mauro Manzoni Psychology Research Laboratory, Ospedale San
Giuseppe, IRCCS Istituto Auxologico Italiano, Oggebbio (VCO), Italy
Faculty of Psychology, eCampus University, Novedrate, Como, Italy
Mariella Montano Department of Cardiology, Ospedale Castelli, Verbania, Italy
Ferruccio Nibbio Division of Cardiological Rehabilitation, Ospedale San
Giuseppe, IRCCS Istituto Auxologico Italiano, Oggebbio (VCO), Italy
Ludmila Peregrinova Department of Psychocardiology, Kerckhoff Clinic, Bad
Nauheim, Germany
Giada Pietrabissa Psychology Research Laboratory, Ospedale San Giuseppe,
IRCCS Istituto Auxologico Italiano, Oggebbio (VCO), Italy
Department of Psychology, Università Cattolica del Sacro Cuore, Milan, Italy
Riccardo Proietti Department of Cardiology, Ospedale Luigi Sacco, Milan, Italy
McGill University Health Center, Montreal, QC, Canada
Cardiac Center, Morriston Hospital, University of Swansea, Swansea, UK
Moshe Rav Acha, M.D., Ph.D. Department of Cardiology, Shaare Zedek
Medical Center, Jerusalem, Israel
Zuzana Řimnáčová Faculty of Health and Social Studies, University of South
Bohemia in České Budějovice, České Budějovice, Czech Republic
Serena Santagostino Department of Psychology, Università Cattolica del Sacro
Cuore, Milan, Italy
Mitzi M. Saunders, R.N., Ph.D., A.C.N.S-.B.C. University of Detroit Mercy,
Detroit, MI, USA
Arjun D. Sharma, M.D., F.A.C.C. , St Paul, MN, USA