Human Rights and Disability Advocacy

321 Pages·2013·1.87 MB·English

by  Maya Sabatello (ed.)

Human Rights and
Disability Advocacy
PENNSYLVANIA STUDIES IN HUMAN RIGHTS
Bert B. Lockwood, Jr., Series Editor
A complete list of books in the series
is available from the publisher.
Human Rights and
Disability Advocacy
Edited by
Maya Sabatello
and
Marianne Schulze
UNIVERSITY OF PENNSYLVANIA PRESS
PHILADELPHIA
Copyright © 2014 University of Pennsylvania Press
All rights reserved. Except for brief quotations used for
purposes of review or scholarly citation, none of this book
may be reproduced in any form by any means without
written permission from the publisher.
Published by
University of Pennsylvania Press
Philadelphia, Pennsylvania 19104- 4112
www .upenn .edu /pennpress
Printed in the United States of America
on acid- free paper
10 9 8 7 6 5 4 3 2 1
Library of Congress Cataloging- in- Publication Data
Human rights and disability advocacy / edited by Maya Sabatello and Marianne
Schulze — 1st ed.
p. cm. — (Pennsylvania studies in human rights)
Includes bibliographical references and index.
ISBN 978-0-8122-4547-9 (hardcover : alk. paper)
1. People with disabilities—Civil rights—History. 2. People with disabilities—Legal
status, laws, etc.—History. 3. Human rights advocacy—History. 4. Convention on the
Rights of Persons with Disabilities and Optional Protocol (2007 March 30) 5. Non-
governmental organizations—Political activity. 6. Civil society. I. Sabatello, Maya.
II. Schulze, Marianne, 1975–. III. Series: Pennsylvania studies in human rights.
HV1568.H855 2013
323.3—dc23 2013020966
Worse than not seeing and not hearing is not to be seen
and not to be heard.
—Helen Keller
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CONTENTS
List of Abbreviations ix
Foreword xi
Don MacKay
Preface xv
Ron C. McCallum AO
Introduction 1
1. A Short History of the International Disability Rights
. Hodgson
Movement 13
Maya Sabatello
2. Our Lives, Our Voices: People with Intellectual Disabilities
and Th eir Families 25
Anna MacQuarrie and Connie Laurin- Bowie
3. Living in the Community, Access to Justice: Having the
Right Makes All the Diff erence 45
Tirza Leibowitz
4. Inclusion or Choice? Securing the Right to Inclusive
Education for All 58
Belinda Shaw
5. An Eye Toward Eff ective Enforcement: A Technical- Comparative
Approach to the Draft ing Negotiations 70
Tara J. Melish
viii Contents
6. Children with Disabilities 97
Gerison Lansdown
7. Women with Disabilities: Th e Convention Th rough the
Prism of Gender 113
Mi Yeon Kim
8. Including Deaf Culture and Linguistic Rights 131
Liisa Kauppinen and Markku Jokinen
9. Imagine: To Be a Part of Th is 146
Lex Grandia
10. Indigenous People with Disabilities: Th e Missing Link 157
Huhana Hickey
11. At the United Nations . . . “ Th e South Also Exists” 170
Pamela Molina Toledo
12. Voices Down Under: An Australian Perspective 188
Heidi Forrest and Phillip French
13. Monitoring the Convention’s Implementation 209
Marianne Schulze
14. Th e Role of National Human Rights Institutions 222
Andrew Byrnes
15. Th e New Diplomacy 239
Maya Sabatello
Notes 259
List of Contributors 289
Index 295
Ac know ledg ments 303
ABBREVIATIONS
AHC/Ad Hoc Ad Hoc Committee on a Comprehensive and Integral
Committee International Convention on the Protection and
Promotion of the Rights and Dignity of Persons
with Disabilities
APF Asia Pacifi c Forum of National Human Rights
Institutions
Bangkok Draft Bangkok Draft : Proposed Elements for a
Comprehensive and Integral International
Convention to Promote and Protect the Rights and
Dignity of Persons with Disabilities
. Hodgson CAT Convention Against Torture and Other Cruel,
Inhuman or Degrading Treatment or Punishment
CEDAW Convention on the Elimination of All Forms of
Discrimination against Women
CICC Co ali tion for the International Criminal Court
CESCR UN Committee on Economic, Social and Cultural
Rights
CRC Convention on the Rights of the Child
CRESOR Corporation of Real Citizenry of the Deaf in Chile
CRPD / Convention on the Rights of Persons with Disabilities
the Convention
CSIE Centre for Studies on Inclusive Education
CSO(s) civil society or ga ni za tion(s)
DPO(s) disabled people’s organizations
DRI Disability Rights International
ECOSOC United Nations Economic and Social Council
GA United Nations General Assembly
GRULAC Group of Latin American and Ca rib be an Countries
ICBL International Campaign to Ban Landmines